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n 1886 three researchers described a genetic disease causing peripheral system damage, a disease that was later named after them: Charcot-Marie-Tooth disease, or in short – CMT.
The disease causes functional damage to the peripheral system, the system in charge of the stimulus transmission to the muscular system.
The damage inflicts a flaw in the electrical stimulus intensity resulting in muscle degeneration and gradual loss of the limbs functioning and feel – hands and arms, feet and legs.
Today, over 3 million people worldwide are diagnosed with CMT, with a ratio of 1 to 2,500.
As of now, no medical cure is available, though throughout time different methods were discovered to cope with the disease challenges, to ease symptoms, and allow an active healthy life.
The CMT organization was founded in April 2019 by CMT patients and parents of CMT-diagnosed children.
The organization devotes its activities to improve the physical and mental well-being of the CMT patients’ community. The organization’s vision is to improve the well-being of CMT patients and their families, and
perhaps create a world in which the CMT disease may be prevented or at least well-treated.
Exercise
Sports training, Occupational Therapy, physiotherapy
Physician follow-up
Orthopedist, neurologist, genetics, physiotherapy
supporting community
Meetings, conferences, and binaries
Mental support
Support groups, professional guidance
Eden’s Story
״My name is Eden and I suffer from a rare neurological disease named CMT. The simple task of writing this sentence is a great challenge for me, though I feel a great sense of significance in raising public awareness of the disease.״
Tikva’s Story
״Out of full comprehension of my new phase in life and its implications, I began a personal process. I acknowledged that once I will successfully lift my spirit, I will help everyone around me to accomplish the same result – and this is exactly what happened.״
Ofir’s Story
״I realized that I have a mission to raise awareness for the battle for equal rights for the handicapped, and live in an accepting and inclusive society that promotes equality.״
